Privacy notice for infant research participants
This privacy notice provides information on how Oxford Brookes University collects and uses your personal information when you take part in one of our research projects. Please refer to the research participant information sheet for further details about the study and what information will be collected about you and how it will be used.
Why do we need your data?
We need your and your child’s data so that we can investigate how babies and toddlers learn language.
OBUs legal basis for collecting this data is:
Public task: your Personal Data will be used in academic research. Oxford Brookes University is a public body and staff and students carry out research in line with the University’s legal powers and constitution.
Your consent is an ethical requirement.
Oxford Brookes University’s legal basis for processing your Personal Data (or information) is as set out in Art 6 UK GDPR.
What type of data will Oxford Brookes University use?
As part of this research, we will collect different types of data, such as questionnaires, video material and contact data. This includes:
· Contact details of the parent or guardian (i.e., email)
· Languages heard/spoken at home
· Parents’ educational attainment
· Household income
· History of Language Problems
· Date of birth
· Gestational age
· Problems at birth
· Ear Infections
· Developmental disorders
We will also collect quantitative data about words that your child understands/says and looking times data. Data will be analysed and publish in journals. Your child will not be identifiable from any of our published findings. Anonymous data files will be used for academic archiving and stored using RADAR. This archive is not publicly available and data will be used only for academic (rather than commercial) use. A summary of the results will be available on our website and social media.
Who will OBU share your data with?
The research will be read within the University and where it is intended that it is published and it may be seen by members of the public. The University will use Google services (e.g. Google Drive) to process your data securely. There is additional information about this in the Participant Information Sheet. Appropriate safeguards will be put in place to make sure that your child’s privacy is protected.
Will OBU transfer my data outside of the UK?
Yes, Google uses USA-based data centres for data storage. For more information, please see https://policies.google.com/privacy.
What rights do I have regarding my data that OBU holds?
You have the right to be informed about what data will be collected and how this will be used
You have the right of access to your data until it is incorporated into the research
You have the right to correct data if it is wrong
You have the right to ask for your data to be deleted until your data is analysed and so included in the research
You have the right to restrict use of the data we hold about you until your data is analysed and so included in the research
You have the right to object to the university using your data until your data is analysed and so included in the research
Where did OBU source my data from?
Some of the information about your child will come from you and some will be generated during the course of the research.
Are there any consequences of not providing the requested data?
There are no consequences of not providing data for this research. It is purely voluntary.
Will there be any automated decision making using my data?
There will be no use of automated decision making in scope of UK Data Protection and Privacy legislation.”
How long will OBU keep your data?
Data generated in the course of research is kept securely in electronic form for at least ten years after the project has ended in accordance with University’s policy. After this point, all data files will be permanently deleted from OBU.
Fully anonymised research data will be stored in the RADAR repository to be shared with other researchers. The anonymised data will not include any identifiable information (e.g. date of birth, postcode, etc.) or video/voice recording.
Who can I contact if I have concerns?
In the event of any questions about the research study, please contact the researchers in the first instance (Dr Nayeli Gonzalez-Gomez: firstname.lastname@example.org). If you have any concerns about the way in which the study has been conducted, contact the Chair of the University Research Ethics Committee at email@example.com. For further details about information security contact the Data Protection Officer at: firstname.lastname@example.org or the Information Management team on email@example.com